May is Cystic Fibrosis Awareness Month

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May is Cystic Fibrosis (CF) Awareness Month. I wrote this post to let you know why helping to raise awareness, and money for this cause is close to my heart.

Let me tell you about a friend of mine. I have never met her in real life, but am friends with her via a game we played on Facebook many moons ago. Over the years I’ve watched as her daughter, Cookie has grown up, and as she and her hubby welcomed their second daughter, Tootsie into the world – who is growing up fast too!

Read » Interview with the mother of two children with cystic fibrosis

Let CF stand for CURE FOUND

May is Cystic Fibrosis Awareness Month

Both of the girls are the cutest little things who (through the photos that I see of them on a daily basis!) love to play and laugh and be silly, just like any other little girl; but, their lives are different…they have Cystic Fibrosis (CF). Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide).

I went to school with a boy who had CF, and he died, aged just 15. That is no life at all. That was a long time ago, back in the early 1990s, and I hope that medical advances these days mean that the life expectancy of those with CF is longer than that…but of course, that takes money and research

Every year, my friend has a fundraiser to help raise money towards finding a cure for cystic fibrosis, and every year I donate money to this cause. She always has amazing fund raising ideas and this year she suggested a sponsored slim. I saw her post about this in her Facebook group but didn’t sign up because I didn’t want to let the girls down, owing to my sporadic weight losses; preferring instead to donate as I always do.

Then I saw this photograph that she posted on Facebook (did I tell you she is an awesome photographer?!) with these words attached:

“there are a couple of these floating around FB so naturally i had to do one myself… almost daily i see a FB post about busy lives and little time to sit and relax.. never getting a break. what would you drop in your life if your time was spent trying to stay alive instead? when you think there isn’t enough time in the day to get everything done thank your good health that allows you to have all that free time. ♥ enjoy the time you have”

Let CF stand for CURE FOUND

And despite the fact that I know both Cookie and Tootsie have CF and through photos and videos that she shares, the tiny snippet of their daily lives, this photograph hit me hard. On the left, Cookie is surrounded by all the fun things that she loves in her life. On the right, surrounded by all the medical equipment to help keep her alive.

It was at that moment I decided to donate, for every pound I lose in 2013, I pledge to donate £1GBP to Hope For Hughes and help to make CF stand for Cure Found.

So far, that is £8 in the pot towards the cause and with each pound lost another pound goes towards finding a cure for this awful disease.

My friend has a page on Great Strides – The Cystic Fibrosis Foundation where you can read more and if you would like to, make a donation. Donate in the UK here.

Yes, there are lots of causes out there, and lots that need money and research, but this is one that is close to my heart and I wanted to share with you.

Thank you for reading ♥

Read » Interview with the mother of two children with cystic fibrosis

Help Make CF Stand For Cure Found - Cystic Fibrosis Awareness Month

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